The Steve Waugh Foundation supports children and young adults 0-25 years living with Rare Diseases. As the only Foundation of its kind in Australia, the Steve Waugh Foundation is dedicated to being ‘somewhere to turn’ for children and young adults living with the rarest conditions, who can often feel isolated. Through Grants, the Steve Waugh Foundation provides life-changing support for services including therapy, equipment, and respite care.

The Steve Waugh Foundation takes a holistic approach in supporting children, young adults, and their families with a focus on their wellbeing, to help them survive and thrive. Since 2005 the Steve Waugh Foundation has championed these stories and is committed to raising much-need funds and awareness for the Rare community.

Steve Waugh is inspired by ‘courage’ and ‘character,’ particularly by children who are in challenging circumstances. Steve and wife Lynette spent over 10 years researching where the gaps and support were most needed for sick children. They wanted to help kids who ‘fall through the cracks’ and have nowhere else to turn for help.

“The Steve Waugh Foundation gave us hope when it was pretty much gone. We have now become a part of a family that strives for great things and has the interest of their Grant Recipients at heart. They are an ongoing support, not just for the Recipients, but for their families as well.”

Mum of Steve Waugh Foundation Grant Recipient, Xavier

Today, the Steve Waugh Foundation has helped thousands of children with life-changing Grants and plays a major role in sponsoring a coordinated approach to the promotion of World Rare Disease Day in Australia.

A significant motivation behind the work of the Steve Waugh Foundation is that ‘no one should have to stand alone; everyone needs a team to support them.’ The Foundation strives to be this support network for those who often go without treatment, without diagnosis, and without hope.

You can help make a difference to the lives of children living with Rare Diseases by donating to the Steve Waugh Foundation. Donations go directly towards life-saving and life-changing Grants such as; portable oxygen machines to help recipients breathe and gain freedom and independence; intensive therapy that allows children to take their first steps; and communication devices that mean families can have conversations they didn’t think possible.

The Captain’s Ride

The Captain’s Ride is the Steve Waugh Foundation’s major fundraising event. Since 2015, our Team of Riders and Ambassadors have embarked on a six-day, on-road cycle tour across Australia. The Captain’s Ride has taken us across 4 states, 1 Australian Capital and over 35 Australian towns on our mission to put Rare Disease on the map.

Our Team, from ex-Olympians to Fathers of Steve Waugh Foundation Grant Recipients, push through some of the toughest riding courses to help raise vital funds which go directly towards life-changing Grants for children and young adults living with Rare Diseases.

Why We Ride: The Captain’s Ride is a tough, enduring journey designed to emulate the attitude and bravery that kids and youth with Rare Diseases show each and every day against the odds. Often with no support groups, no funding, and nowhere else to turn, The Captain’s Ride aims to change this by raising awareness and putting Rare Diseases on the map.

At the core of The Captain’s Ride is a Leadership Program for Captains of Industry, emerging leaders, and anyone who wants to be a Captain in their own life. The Steve Waugh Foundation has welcomed over 30 Ride Ambassadors to the Team, who lead and inspire our Riders through the hardest days of riding, including: Adam Goodes, Anna Meares OAM, Cadel Evans AM, Daley Thompson CBE, Kurt Fearnley AO, Michael Milton OAM, Rohan Browing, and the captain himself Steve Waugh AO.
Ultimately, The Captain’s Ride is about people from all walks of life leading, inspiring, supporting and guiding others. Our key motivators – the children, young adults and their families who live with Rare Disease and show ‘Strength of Character’ every day.


Images courtesy of the Steve Waugh Foundation